Wednesday, July 8, 2009

Fibromyalgia Circle of Care

Although many of us are joining hands in an informal circle of care for fibromyalgia patients, three recognizable groups are joining forces to create an official Fibromyalgia Circle of Care.

In a recent article in Chiropractic News, Johns Hopkins University School of Medicine, The Institute for Johns Hopkins Nursing, and the National Fibromyalgia Association announced their collaboration in the Circle of Care program with the goal of improving patient outcomes.

The article comments that in the first five to eight years after the onset of the disease, many fibromyalgia patients see an average of four doctors before an accurate diagnosis is made. This means that for five to eight years the patient may have been struggling with fibromyalgia AND the results of misdiagnosis, under-diagnosis and inappropriate treatment. (Victor Marrow, PhD, Executive Director, Office of Funded Programs/CME, Johns Hopkins School of Medicine)

Further, the article includes the following information: "With fibromyalgia affecting up to 10 million people in the United States, or up to six percent of patients seen in general medical practices..." Wow, that's a lot of people who could benefit from this unique collaboration.

We applaud this joint effort and hope you will too. For more information, email info@circleofcare.md . You can link to the article by clicking here Circle of Care.

Together we can do this! Join hands, join forces...join the fight for a cure for fibromyalgia.

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