No, it isn't easy.
Yes, there will be days you want to just stay in bed. There may be days you can't do anything BUT stay in bed.
But there will be days...and that's the gift you can't forget. You have days. You are alive. You are important. You have something to contribute. You are YOU, and you are unique and precious.
Make sure you don't let fibro win, it may keep you in bed for a day or two, but that isn't winning; if you let it suck your smile and happiness it will have won.
The top picture is of my daughter Kalen with her niece, Kayla - a miniature Kalen as you can see. Kalen suffers from the collective challenges of fibro every moment, just as so many do. But she also chooses to celebrate life...and savor the good moments. She is in college. She is dating. She rides her bike. She eats smart and rests well. She has her bad days, but she lives for the good days. She is brave and beautiful and she is in pain; she has fibromyalgia.
Cysts and pain and fatigue and mood swings make it a challenge to rise to the occasion sometimes, but she almost always manages (without whining or complaining), as you can see in the second picture of Kalen as a bridesmaid, which was taken at Kalen's sister's wedding.
She is my inspiration. If you need someone to help you, use Kalen. She is amazing. You can email her at teenfibro@gmail.com. Or you can always email me at that same email address.
Dream. Never give up. Don't let it win. This final picture is of Kelly and Logan, Kalen's older sister and her new husband. It's magical, isn't it?
Kelly doesn't have fibromyalgia, but she has had her own challenges, as we all do. And yet, there she is, a bride and now married to her dream guy. She is also my inspiration.
I know that you can do this, and together we can increase awareness and improve treatment of fibromyalgia.
Life can be magical for all of us. So, please, let the magic begin in your life...remember who you are!
What a lovely and heartwarming post! I'm so happy for you and your family! It's tough living with Fibro. and sometimes it's even tougher remembering the little blessings that we all have. But you're right, we must remember and cherish them.
ReplyDeleteJenn
This is a great blog and that was a great entry! It's definitely tough living with Fibro. Lately I've been feeling better about my fibro, the best thing I've found for stiff mornings is my ChiliPad - a mattress pad that lets you cool down (or heat up) your bed, mine lets me set any temperature between 46 and 118 degrees. It helps with pain and I have been getting more sleep because I'm not woken up by pain as easily. Hope this helps!
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