Thursday, August 27, 2009

On the Road...

I have been travelling for the past several weeks and will be pretty much continue trekking through southern Utah and then back to New Mexico for the next week or so. Thanks to those who have visited the site and posted as well, I will be back and focused sometime next week!

Carry on!

Friday, August 14, 2009

A Book about Fibro!

PRLog (Press Release) – Aug 13, 2009 – The Missing Pieces of the Fibromyalgia Puzzle

“Perhaps the most sensible book on fibromyalgia ever written” according to Frederick Wolfe, M.D., Master, American College of Rheumatology and lead author of The American College of Rheumatology 1990 Criteria for the Classification of Fibromyalgia.

This is the book that changes everything for patients, healthcare providers, and everyone with an interest in truly understanding the cause of fibromyalgia and chronic widespread pain.

In The Missing Pieces of the Fibromyalgia Puzzle, author Jeff Sarkozi, M.D., F.R.C.P.C., F.A.C.R. provides the revolutionary insight and understanding that redefines the landscape of fibromyalgia knowledge, diagnosis, and treatment by exposing the fallacy of pain from nowhere, revealing the failure of the fibromyalgia diagnosis, elucidating the true cause of fibromyalgia pain, and offering real treatment for what’s really going on.

The Missing Pieces of the Fibromyalgia Puzzle is the most ground-breaking and transformational book ever written on fibromyalgia and chronic widespread musculoskeletal pain. It does what no other book or publication has ever been capable of doing. Through original, cutting edge clinical research results and evidence-based analysis, it actually identifies the cause of pain in fibromyalgia, the mechanism by which it evolves, how it is modulated, and how to effectively treat it.

This compelling, scholarly, yet immensely accessible new knowledge demystifies fibromyalgia and chronic widespread musculoskeletal pain and makes everything that is unknown about the relationships between pain, tenderness, disability, sleep, weight related issues, psychological and psychosocial disturbances, and sexual difficulties clear and understandable.

Written for patients and healthcare providers, The Missing Pieces of the Fibromyalgia Puzzle will transform the lives of individuals afflicted with fibromyalgia and chronic widespread pain. Its enlightening blend of traditional and complementary therapies guides and empowers patients and their healthcare providers with the most unique, integrated, and thoroughly effective self-managed wellness recovery program ever published. It provides the substrate of truly justified hope and faith in the ability of individuals to transcend the suffering of fibromyalgia to make positive changes in their health and overall well-being.

Jeff Sarkozi, M.D., F.R.C.P.C., F.A.C.R., is a rheumatologist expert specializing in the diagnosis and treatment of fibromyalgia and chronic widespread musculoskeletal pain for thousands of patients over more than two decades. Dr. Sarkozi has researched, developed, and patented numerous unique orthotic devices and created original, innovative treatment programs to relieve symptoms and improve function in patients with fibromyalgia, chronic widespread musculoskeletal pain, and other arthritic conditions. He currently directs the Fibromyalgia Polypain Arthritis Center in Orange County, California.

Ordering Information: Web Store: http://www.missingpiecesfibromyalgia.com. Telephone: 714-973-0106. Fax: 714-973-0129. Mail: Sagecoast Publishing, 801 North Tustin Avenue, Suite 503, Santa Ana, California, 92705. Softcover ISBN: 978-0-9819223-3-1, $29.95. To contact Jeff Sarkozi, M.D., F.R.C.P.C., F.A.C.R. for interviews, speaking, or lectures use contact information accompanying this press release or visit http://www.fmpolypain.com.

Western Medicine is Behind!

Dr. Oz and Oprah have joined the conversation on fibromyalgia! Dr. Oz's concluding remarks in the article are here:

"Because Western medicine was slow to accept fibromyalgia, it is behind in its work; this is an area where patients will want to take a serious look at alternative approaches. Energy-based medicine could offer some important advances in treatment over the next decade, but since it has yet to be tested by independent research, I think it's premature to base your therapy solely on this approach. I'm more impressed by Teitelbaum's supplement regimen, and not only because he has tested his theories: I've put patients on this program with very good results. I would add counseling, as it should always be a part of fibromyalgia treatment. If after a couple of months you don't see improvement, talk to your doctor about drug therapy."

We are not alone in this fight!

Thank you to Oprah and Dr. Oz!

Sunday, August 9, 2009

Tired

I am tired of the reality of fibro, and I don't even have it.

I am tired of the added burden and strain to what is already a stressful, difficult life.

I am tired of the lack of understanding and acceptance by those who haven't taken the time to do their homework and learn about this real disease.

I am tired of people looking at me when I talk about my teenage daughter's fibro as if I am making excuses for someone who is simply experiencing the trials of the teenage years.

I am tired of their condescending nods while their minds are somewhere else.

I am tired of worrying that doctors are not treating fibro as they should, because even they don't get it.

I am tired of it all. And that is why I am blogging. And that is why I am reaching out. And that is why we need your help to get TeenFibro off the ground.

And my tired is nothing at all compared to the "tired" felt by someone with fibromyalgia. I can rant and feel a bit better. They can rant all they want and the fatigue and pain will still be there.

Thank you for all you do to help bring fibro to the forefront of research and treatment efforts.

Together we can beat this. No matter how tired you are or I am.